Jarod's mom arrived Thursday night, making our lives much less complicated, and our house 1000 times cleaner. Friends have been helping us with Zinashi, but it is such a relief to have someone who can take charge of her care all of the time. There is a lot less juggling of schedules, though still some.
We have trouble getting time together as a family unit, but we are managing. The weekend allowed for some meals together at the hospital, which isn't ideal, but it's what we've got, and we won't complain.
Zinashi is curious about everything going on with Elvie, so we talk about all of Elvie's special accessories and what they do and why. For one visit, Zinashi happened to get to the hospital just in time for NG tube placement. That was pretty exciting stuff, and Zinashi was very serious about seeing what went on. Now on the list for home school science: how a tube that goes in through your nose can make it all the way to your stomach.
The doctors identified a parasite and then lab cultures showed that Elvie's UTI was the result of not one, but four (FOUR!) bacteria, two of which are resistant strains. Once she was on the appropriate medicine for both parasite and bacteria, it took about twelve hours for her to start to perk up. She woke up Saturday morning (at 4am, which was not the joy of my existence), ready to make life happen. She now sticks out her tongue when I stick out mine, moves a ton more overall, and seems to figure out something new every day, like how a bit of light hyperventilating will get her what she wants pretty fast since it also makes her respiration monitor go off. Little dickens.
She is also interested in playing a lot more. Saturday morning, she spied the diaper package and spent a good ten to fifteen minutes grabbing at it and feeling all its sides and corners and insides. Later, on my lap, I handed her my face wipes package, and it was like I gave her a pony. I am now on the hunt for baby toys that are not ugly, but make a nice crinkly sound. Someday she'll be strong enough to pull the plastic packages towards her, and she's come too far to be allowed to nosh on some chokables.
For me the hardest part of the hospital stay is that I don't get to see nearly enough of my Zinashi. The second hardest part has been the sleep deprivation. Last night, Jarod took night duty and stayed with Elvie for most of today as well so that I could both hang out with Zinashi and get some sleep. Zinashi and I watched a movie together last night, and I slept a solid eleven hours shortly thereafter. We woke up in time to go to our favorite neighborhood bakery for beignets. Then the rest of today I did things like change the cat litter and do laundry and put soup ingredients in the crock pot. It was with a little ache in my heart that I headed back to the N to swap places with Jarod at the hospital. I know that this is the best place for Elvie right now, and that the staff here is working super hard to get her well enough to go home, but it's still tough to have my babies in two places, and my life in limbo. I miss each girl when I am not with her, and I miss being the caretaker of my little family and our little house, even if I do a really poor job of cleaning the place much of the time. I'm just looking forward to the day that all of us get to be at home.
But for now, I am here at the hospital, perfecting the art of putting together lounge-y outfits that go from sleep in the cribside chair bed to ready for the day's meetings with medical staff in moments. By the time I'm done here, I'll have a full arsenal of ensembles that will allow me to sleep in my clothes, therefore avoiding the act of getting dressed in the morning. I'll just go ahead and revel in the glory of that possibility.
As always, thank you for being here. We feel your love, and it makes our days better. I have no doubt that all your prayers, thoughts, and well wishes make a difference for Elvie and for our little family as a whole. You guys are the best.